(This Guest Column is contributed by Kara Karlson, disability advocate and election law attorney.)
Arizona has administered over 2 million
COVID-19 vaccines. This is a huge
milestone and great news. Unfortunately,
despite promises from state leaders that the most vulnerable would be prioritized, pleas from
multiple disability advocacy organizations have so far fallen on deaf ears. The failure to vaccinate our most vulnerable
should (and can) be rectified immediately.
It is the morally right thing to do, it saves taxpayer dollars, and would
be simple to administer.
COVID-19
Disproportionately Affects People with Disabilities
COVID-19 poses a disproportionate burden on
people with intellectual and developmental disabilities. People with disabilities may be more likely
to be infected with COVID-19 because many require care from people outside the
home, use mass transit, or work jobs without a telework option. We know that children
(0-17 years old) with intellectual and developmental disabilities (“I/DD”) are significantly
more likely to be diagnosed with COVID-19 than other children.
People with intellectual and developmental
disabilities are also much more likely to suffer adverse outcomes than people
without disabilities. Evidence early in
the pandemic indicated that people with intellectual and developmental
disabilities were two to three times more likely to die from COVID-19. This early finding has been repeatedly
confirmed by independent
research. Arizona recently prioritized
vaccination for people with Down’s Syndrome, who are ten times more likely to die from COVID-19. This is a step in the right direction, but it
leaves many others in the disabled community unprotected.
The increased risk of death is most marked
in children
with intellectual and developmental disabilities, who are ten times more
likely to die from COVID-19 than other children. The increased likelihood of death for
children, who can’t yet get vaccinated, makes it very important that their
caretakers are prioritized. Despite the
clear and urgent need to prioritize people with I/DD, they are not currently a
priority for state health officials.
Savings
to the State
In addition to being the right thing to do
for people with disabilities, it is also the right thing to do for Arizona’s
taxpayers. Care for people who are
hospitalized with COVID-19 is costly,
and often includes long-term ICU care. This care is more
expensive if complicated by other health conditions that many people with I/DD
have. On the other hand, COVID-19
vaccines cost
between $10 and $30 per dose. A growing number of other states have recognized the value of prioritizing people with I/DD
for COVID-19 vaccines, and Arizona should join their ranks.
Verifying
Eligibility
A simple way to verify eligibility for
vaccination would be to allow people 16 years of age and older (or caregivers to
younger DDD members) use their Division of Developmental Disabilities (“DDD”)
insurance card to be vaccinated.
To be a DDD member, a person must be
diagnosed with at least one of the following disabilities: cerebral palsy, epilepsy, autism, or
intellectual disabilities. In addition
to the diagnosis, a member must have “significant limitations in daily life
skills” such as an inability to communicate, requiring significant help with
bathing, and needing daily supervision for their safety. DDD members are significantly more likely to
have multiple comorbidities that make them more susceptible to severe
COVID-19.
The state vaccine portal already requires
anyone who is registering for an appointment to provide their insurance
information. DDD Members have unique Member
IDs, and the group name “AZDDD” on their insurance card immediately identifies
them as a DDD Member. The state portal should
recognize DDD Members and allow them to make an appointment for a COVID-19
vaccination. Alternatively, the member
could show their insurance card at the vaccination site.
Call to Action
Under the current vaccination schedule,
thousands of Arizona’s most vulnerable people remain susceptible to a virus
that could kill them or add health complications to a population already coping
with significant, chronic health conditions.
The new age-based approach taken by the state in some ways exacerbates
this disparity. There is no scientifically-based
reason a healthy middle-aged person should qualify for vaccination before a
person with severe developmental disabilities.
Given the increased risk of hospitalization and death DDD Members face
as a result of their disabilities—and the fact that the infrastructure exists
to allow the state to reserve these vaccines for those who qualify—there is no
excuse to not prioritize DDD members for COVID-19 vaccines.
If you want to help make a difference for
people with I/DD, please join the Momvocate community. We need everyone involved, and contacting
their government health and elected officials, to make a difference.
(Kara is the mother of two vivacious daughters, disability advocate and member of the Arizona Developmental Disabilities Advisory Council, election law attorney, and Arizona Pioneer descendant. Arizona's Politics and Arizona's Law publish guest commentaries from time to time. If you have something on your mind that would be of interest to our readership, please inquire within. Better yet, send an email to "Paul.Weich.AZlaw @ gmail.com".)
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